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look at her, surprised.
She smiles. “What’s stopping you?”
“I—I can’t,”
protest. “I couldn’t leave you, not
now …”
“Nonsense!” She laughs. “I’m quite capable of
looking after myself, thank you very much. And you can
afford it—you know Trudie put that money aside for you.”
“What? No, Nana. can’t. That’s for the future.”
“The future starts today, Rosie,” Nana says firmly.
“If Trudie’s taught us anything, it’s that life’s too short to
put things off. We mustn’t waste
single precious
moment.”
“Nana—”
“Rosie,” she interrupts, her eyes serious. “You’ve
put your life on hold for far too long. You’re nearly
eighteen.” She squeezes my hand. “Have you thought any
more about taking the test?”
“What?” look up, surprised.
“The predictive test—for Huntington’s. You can’t let
it overshadow your life, Rosie—”
The doorbell rings.
“I’ll get it!” say quickly, jumping to my feet and
darting past her, my head throbbing as the walls of lies
close in.
How can tell her? How can possibly tell her don’t
need the test results anymore, because
know it’ll be
negative because Trudie wasn’t my mother—I’m not her
granddaughter after all—I’m just some stranger an
imposter
fraud
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can’t tell anyone, realize with jolt. I’ll have to lie,
have to live with this secret—this terrible, awful secret—
for the rest of my life
open the front door to find Andy shivering in the
cold morning sunlight. stare at him in surprise.
“Reckon I’m the last person you want to see right
now, huh?” He looks at me nervously. “I’m really sorry—
about yesterday.”
shrug. “Forget it.”
“And about your mum—having Huntington’s—
about thinking …” He shakes his head. “I’m so sorry. No
wonder you couldn’t come traveling, couldn’t call
should’ve waited, should’ve stayed, should’ve been there
for you.” He looks at me, his eyes pained. “I’m so sorry,
Rosie.”
shake my head. “It’s okay.”
“I looked up Huntington’s online—I haven’t slept.
Have you been tested? Do you have it too?”
“Rosie?” Nana calls from the lounge. “Rosie, who is
it?”
“It’s just Andy, Nana! We’ll be in in minute!” call
back, pulling the front door closed behind me.
“Well?” he asks urgently. “Have you had the test?”
“Andy, …” hesitate as his blue eyes pierce mine.
“Yes.”
sigh, already weary of lying. All that sneaking
around, going to the clinic for counseling, taking the test
without anyone knowing, any pressure, anyone to talk me
out of it
and all along I’d only had to ask Sarah.
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He looks at me fearfully, his voice whisper. “Have
you got the result?”
shake my head. “My appointment’s tomorrow,
but—”
“I’ll come with you.”
“What?”
“I’ll come with you. I’ll drive you there.”
“No, Andy, thanks, but—”
“Please, Rosie,” he says earnestly, his eyes clear,
intense. “Let me go with you. Let me be there for you this
time.” He takes my hand in his. So soft, so warm. “Please,
Rose,” he begs. “I feel like such shit.”
squeeze his hand. “You’re not,”
whisper. “You
didn’t know.”
“But
do now.” He gazes down at me. “I’m here
now.”
My chest aches as look up at him.
It couldn’t hurt, could it? To go to the clinic, to get
my results—though already know what they’ll be. It’d
put Nana’s mind at rest, after all, and it would mean one
less lie to tell
And it couldn’t hurt to double-check, to be
sure
“Okay,” whisper.
Andy’s face lights up, and he pulls me suddenly into
tight hug. let myself relax in his strong arms, my face
buried against his chest, inhaling that familiar warm
musky Andy smell.
No, it couldn’t hurt.
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The clinic waiting room is daffodil-yellow and filled
with bright posters and big, leafy potted plants, the coffee
tables strewn with glossy magazines covered with
beautiful smiley women—every trick and tactic possible
to lift the spirits and thoughts of its occupants.
They needn’t have bothered. I’ve probably leafed
through every one of these magazines—and never read
single word. No distraction works when you’re waiting to
discover your fate. Not really.
When mum was first diagnosed did what Andy did
and looked Huntington’s up online. I’d never heard of it
before, so was amazed at how many sites there were
offering information and advice.
Essentially,
gathered, Huntington’s is
genetic
mutation that causes
progressive degeneration of your
brain cells—something along the lines of the physical
effects of Parkinson’s plus the mental deterioration of
Alzheimer’s—slowly stripping you of your ability to walk,
talk and reason. Most people develop symptoms between
the ages of thirty and forty-five, but there’re also juvenile
and late-onset forms. Mum had the latter.
was surprised to read that there are currently
about 6,700 reported cases in England and Wales, and
around 30,000 in the United States, though most of the
websites
looked at seemed to think that there are
probably twice as many cases as the “official” numbers
reported, because people often hide the condition due to
stigma, insurance or family issues, or just decide not to be
tested. Once the symptoms start it usually takes ten to
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twenty years to kill you—although the suicide rate is
scarily high—and children of parents with HD have fifty-
percent chance of inheriting it. Oh, and there’s no cure.
Basically, it’s the worst thing could possibly have
imagined.
The more
read, the more surreal it felt—the
discovery of the disease, its progression
None of this
could really be happening to my mum, could it? But when
got to the symptoms, several seemed to jump out at me:
involuntary movements (chorea), slurred speech, mood
swings, outbursts of anger, difficulty multitasking,
forgetfulness, clumsiness, slow reactions, weight loss,
depression, paranoia
Suddenly the last few years
seemed littered with signs, each screaming out at me that
there was something wrong.
But they’d all seemed so trivial, so unimportant at
the time. Mum had always been flighty, forgetful, easily
flustered—she couldn’t cope if changed my plans at the
last minute or asked her to do several things at once, like
test me on my revision while she cooked dinner or
washed laundry. remember got so cross with her for
dyeing my school shirt pink once, then she’d blamed me—
said I’d been distracting her—and we’d had
huge row
and I’d stomped up to my room, slamming my door
behind me.
But that was normal, wasn’t it? Teenagers are
supposed to argue with their mothers, aren’t they? Bex
certainly did—she had screaming rows with her mum.
Fortunately, my mum always calmed down really
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quickly—way before me. She’d just get very upset, have
huge outburst, and then it would be over. Friends again.
just thought she was going through the menopause.
But after her diagnosis suddenly had to reassess
every argument, every fight we’d ever had, trying to
untangle Mum from the disease, the terrible things I’d said
echoing guiltily in my ears.